European Institute for Innovation through Health Data (i~HD)
Hereby the agenda of the Inaugural Conference of the European Institute for Innovation through Health Data (i~HD) that will be held in Paris on March 10, 2016.
i~HD is a not-for-profit European institute, with a mission to guide and catalyse the quality, interoperability and trustworthy uses of health data, for optimising health and knowledge discovery.
The role of i~HD is to provide independent governance oversight of clinical research platforms and services, as these expand to connect with multiple hospitals across Europe. The conference will present the EHR4CR platform and its pharma-led adoption programme, and detail the i~HD governance services that reflect state-of-the-art in the trustworthy re-use of health data for research. You will also learn about Europe´s largest “big data” project in health: EMIF (European Medical Information Framework). The views of patients on the benefits of reusing their data for research will be presented by Mary Baker, past President of the European Brain Council, one of our keynote speakers.
This Inaugural Conference will mark the parallel launch of a novel European platform to support multi-centre clinical research. This operational platform, the result of the European project EHR4CR (Electronic Health Records for Clinical Research), can connect securely to the data within multiple hospital EHR systems and clinical data warehouses across Europe, to enable a trial sponsor to predict the number of eligible patients for a candidate clinical trial protocol, to assess its feasibility and to locate the most relevant hospital sites.
The conference will also spotlight the challenges and state-of-the-art approaches to improving the quality and semantic interoperability of clinical data. i~HD will play an important future role in the development and quality labelling of semantic interoperability standards, bringing together clinical and research domain experts, with patients, to help ensure that future standards support patient care, learning health systems and clinical research.
We are especially inviting healthcare providers from across Europe, representatives of the pharma industry, patient associations, health professional associations, the health ICT industry and standards bodies. The event is kindly being hosted by the Assistance Publique - Hôpitaux de Paris. Participation is upon invitation only, but free, although participants will need to cover their own travel costs. May we kindly invite you to register your interest via the conference website (www.i-hd.eu/ic2016) using the code i-hd2016.
Georges De Moor